Rare Disease Day 2013: Maintaining bone health in people with multiple myeloma

Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond

Getting a diagnosis is just the first of many challenges patients with rare diseases - and their caregivers - face. Read More

The career paths that lead to everyday acts of heroism

Often, we don't think about heroism until we see it in action - when disaster strikes and ordinary people exhibit extraordinary courage and compassion to help victims in their time of need. The truth is, however, that the best of human nature is on display every day in the lives of millions of Americans who work in public service jobs across the country. Sometimes all it takes to tap that inner hero is an opportunity - and the education - to serve others. Read More

How your unused airline miles can help a child

Helping a child in need may be easier than you think, by redirecting a common resource that often just goes to waste. Read More

How to support your friend in a split

When a marriage ends in divorce, it's not just the couple who is involved. Friends and family members are also part of the process and often play many different parts. Support can make a critical difference to your friend, but unfortunately, doesn't come with how-to manual. Read More

Cycling to help stop diabetes

Tour de Cure is a fun way to get out with your family, friends or co-workers and has routes designed for all riders - from 5-mile family rides to 100-mile century rides. It is a ride, not a race, so participants are encouraged to go at their own pace. Read More

New initiative celebrates unsung heroes of severe allergy awareness

Nearly 1 in 10 Americans lives with a rare disease

Did you know that the same number of people die each year from idiopathic pulmonary fibrosis, or IPF, as breast cancer? And yet IPF, a rare and debilitating disease that causes permanent scarring of the lungs, is still relatively unknown. Read More

Rare diseases: Increasing awareness for better patient outcomes

Five reasons Asian Americans should get tested for hepatitis B

More than 1 million Americans have a lifelong, or chronic, infection of hepatitis B. This includes one out of every 12 Asian Americans. If you or your parents were born in Asia or the Pacific Islands, the Centers for Disease Control and Prevention (CDC) recommends that you get tested for hepatitis B. Read More

Igniting the conversation about rare diseases

Easy ways to make a difference this summer

Summer provides a much needed break for families and a perfect opportunity to make a difference in the community. Depending on interest and time, there are many different ways to get involved or make a charitable contribution. Read More

Technology can turn $25 into a family giving tradition

Technology has been connecting families for generations. The invention of the phone let us hear voices of loved ones far away, and the creation of the Internet helped us to see them. Today, those same technologies that we've used to bring our families closer together are helping us to connect with and support families who are worlds apart. In doing so, the very concept and experience of "gifting" and philanthropy is being transformed. Read More

Digging soon? Call 811 first for safety's sake

With winter forgotten and spring in the air, many homeowners are packing away their snow boots and rolling up their sleeves to get started on long-awaited home improvement projects. Across the country, homeowners and professionals alike will plan landscaping and home-improvement projects this season that require digging. Read More